Celebration Day – Phase 1 Complete

I am celebrating.  Well, actually I am quite sore from the surgery yesterday where they took my port out and put in a central line for collecting T cells today.  I was sedated, and they numbed me up, but there was a lot, I mean a lot of yanking around my chest and neck area… and that left me very tender last night and today.  Nonetheless, I am celebrating!

20170820_140949

This has been an outstanding visit to California.  Today was collection day where my little T cells get collected and will soon be off to be genetically modified.  Hard to believe that in 3 weeks I will be a Genetically Modified Organism.  It is a strange thought given the fact that GMOs as we know it are bad and when I hear that acronym thoughts of Monsanto and people in white coats doing weird things to our food come to mind.

gmo

But I think being a GMO will be a good thing in my case.

Today we are also celebrating Kaitlyn’s 16th birthday!  I am so thankful to be her mother and even more thankful to have met this milestone in her life.  My situation has made me consider the future milestones that I am hopeful to witness in the girls’ future.  But living for today is also a blessing and rather than looking at the glass half empty, I hope to always view it as half full.

20170817_064500

Yesterday, was Solar Eclipse Day.  I was scheduled for surgery at noon with appointments in the morning.  Our alternate plan if we weren’t here at Stanford, was to be in Victor, Idaho in the middle of the total eclipse path among friends in basically our favorite place (Teton Valley) on earth.  So being here, we didn’t plan to see it, no glasses purchased, and during our visit with Dr. Miklos, he bounded into the room bearing gifts for all as he passed out Solar Eclipse viewing glasses to everyone … he was like Santa Clause going up and down the halls passing them out with such joy.  I overheard him saying to people, “I like you, and I like you, and I like you…”  So, despite our disappointment with not getting to be in the “path”, we actually did get to see it, thank you Dr. Miklos!!

20170821_100707

Our weekend was amazing as well because what do you do in the Bay area when you have a weekend with no plans?  You go to Napa of course and relax … which is exactly what we did.  It was so nice to forget about cancer for the weekend and just be on vacation together.  We ate at some amazing restaurants, got massages, visited our favorite winery, and enjoyed riding in the rented mustang convertible  in the  California sun.  I can’t even begin to tell you how hard cancer is on a marriage, but that is a discussion for another time.  Needless to say, we needed a vacation from cancer and we finally got one (if even for just a couple of days).

Can I just say that I never enjoyed a convertible as much as I did without hair.  I didn’t have to worry about my hair getting all whipped around and flying around in my face.  It was so liberating to be hairless with the top down!

And in the midst of an already outstanding trip to Palo Alto where everything that needed to happen for the trial to move forward happened, we reconnected with my old childhood friend Tina Tang and her boyfriend James Witt.  Two incredibly generous friends that are as good at the core as people get.  We will be staying one of James’s cottages that is 15 minutes from the hospital when we return… blessings, blessings, blessings.

I just can’t help but feel that God continues to go before us and pave this road.  I know to trust Him completely because He is a miracle working God.  So tonight I will go home and hug my girls and give Kaitlyn a extra big hug.  We get to celebrate that God has a plan and He delivered phase 1 on her birthday.

Onward and Upward.

I’ve told you all this so that trusting me, you will be unshakable and assured, deeply at peace.  In this godless world you will continue to experience difficulties. But take heart! I’ve conquered the world.  John 16:33

 

 

 

8 comments

  1. Kay, I just wanted to let you know that I’m praying for you and your family. I have seen first hand how a positive attitude can make all the difference when fighting cancer. Your fb posts are so inspiring and uplifting and I can can “feel” your positive energy. I’ll continue to keep you, Brandon, your precious girls, your parents and family in my prayers. Much love and hugs! Dawn Darby Gall

    Liked by 1 person

  2. Kay God wasn’t kidding when we believed His Miracles were coming!! Love hearing about all of them. Continued prayers over you and family. Kay

    Sent from my iPhone

    Liked by 1 person

  3. So now Kay, we will enlarge our prayers. We will be including those T cells of yours as they are modified and made into amazing, strong and powerful cancer killers!
    We are so grateful that you had a devinely arranged week end in CA and we praise our Heavenly Father for all the details He covered for you and Brandon.
    We continue praying for all of you and will be including those T cells in their journey. Much love to all!

    Liked by 1 person

  4. Dearest Kay, your posts bring me to tears every time I read them!! Not of sadness, altho one might think that would be the first thing to come to mind when facing cancer, but of my amazement of your beautiful faith, the lives you have touched and inspired, and the way you inspire my own faith in our awesome, powerful and loving God!! Belated birthday wishes to sweet Kaitlyn!!

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s